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Andrews Updates

5/2/2012 Nicholas' Video for Grandma

My Mom gave Nicholas a barbie jeep she had gotten, and he was so proud of it he wanted to make a "youtube" video of him showing it off. He really did a great job so I posted it below. :)


3/18/2012 marks 3 years

Just 2 days ago marked 3 years since Andrew's aneurysm ruptured!!!!! March 16th..... then late afternoon March 17th he was transferred to Children's Hospital of Milwaukee. He has accomplished so much in 3years :)

He can already count to 10 :) He knows his colors. He loves books.

He loves his big brother and baby sister.

He is a determined 3yr old, a little demanding like a small king, just comes with the age!!!

 

update 3/2/2012

I added Isabella's new video to the website, feel free to leave comments ;)

you can reach the page here

IMG_82381

 

 

Milwaukee visits (update 02/08/2012)

Andrew had his back MRI this morning for follow-up on his syrinx (pocket of fluid) in his spine. Luckily the nurse got an IV line in the first try. Usually he is a really tough IV start. So we were thankful for that starting off the morning. Otherwise the MRI was uneventful with the sedation lasting all day, still tipsy at ~8pm. 

We spoke with his neurosurgeon about the MRI, the syrinx is stable and has not increased in size. So we will get another MRI in 1 year to evaluate the brain and back. That is good news.

His Neurosurgeon does want him to see an Orthopedic doctor for his back/scoliosis and that should be in May.

Andrew also saw a rehab doctor. The plan will to get more botox injections in the left arm/hand. We can hopefully coordinate both appts in May.

So more appts on friday...... but good news so far.

Andrew's Birthday (update 02/04/2012)

Today we celebrated Andrew's 3rd Birthday. His true birthday is on Monday. Andrew will be seen in Milwaukee this week for his follow-up MRI, neurosurgery appt, EEG, new neurologist appt and a rehab appt. So hopefully it all goes well. 

Everyone is enjoying our baby Isabella.

All the children are busy learning and growing so much every day......

Nicholas is learning counting, adding, reading 1st level stories. He really enjoys school now. He has started Wrestling and is a little shy but is doing really well with learning all they have to teach him.

Andrew is learning more vocabulary everyday and is talking so much. He is very active and eager to learn. He tries hard to use his left hand, little progress every day I guess. He still has so much to work on with the hand/arm but every little bit is progress.

Isabella is happy, smiley and cooing.

 

 

Isabella (November 29, 2011)

We came home from the hospital today (on her due date) and baby Isabella is doing well. Big brothers Nicholas and Andrew were so excited to see us come home. And they really wanted to hold her Smile

Isabella Paige

7lbs. 3oz. 19inches

November 29, 2011 6:44 pm.

Happy Thanksgiving!

Happy Thanksgiving Everyone !!!!

Enjoy this little video Nicholas and Andrew helped me make.

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10/01/2011 update

Andrew has restarted all his therapies for fall. PT 1-2x/week, OT weekly and speech therapy every other week. His therapists have been very impressed with his progress over the summer, especially speech. Andrew has expanded his vocabulary tremendously over the past couple months and says new words daily!

He has been using his left hand (that has very little functioning) on his own a lot. Like grabbing the door knob with 2 hands. Mr. Lefty doesnot  help too much, but it is an accomplishment to have that arm over his head and working on a task.

He has the botox injections working still, so he is learning to be able to try use the arm and hand.

Big brother has been a very good therapist for Andrew also. He encouarges him and helps him :)

Big brother has been going to kindergarten which is quite a change for everyone. He enjoys going but it is still tough on him to actually go.

Counting down to our new baby sister, at 31 weeks now. Seems like forever!

08/04/2011 Update

Andrew finally had his botox injections yesterday. He got 4 shots in the left arm muscles. It will take a week to start working and up to a month for the full effect. Then they will last ~4months. We are to stretch his arm muscles for 20-30seconds 2-3 times daily. He did pretty well with the sedation as he needed to be completely out for the shots. We understand they are very painful and how do you hold down a little guy for that many injections.

So time will tell how they work...... we hope for the best :)

He will follow-up with his rehab doctor in ~3 months.