04/27/2011
Wednesday, 27 April 2011 08:59 | Written by Administrator | 
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I apoligize for not updating sooner... time just slipped away :)
Andrew had his MRI done at the end of March. The syrinx (pocket of fluid) in his spine grew 2cm. It is now ~5cm. Per the neurosurgery PA, it is pressing on nerves that could affect Andrew's sensation for urination. It will also cause some scoliosis. Some patients have problems with a small syrinx and no problems with a large syrinx. It is case by case. So we see the Neurosurgeon at the end of May to see what our plan is. Otherwise they will be doing another MRI in 6months to check the syrinx growth.
His neurologist is happy with his with his progress. We increased his anti-seizure medication since he is growing/gaining a little weight. She will see him again in October and do another EEG.
Andrew will also see rehab in May and he may get a botox injection into his left hand/arm. His therapists state this works well and it will allow him to have more control of the hand without tightening up.
Therapy has been going well overall and he is really trying to use his left hand. It is very hard but he puts things into the hand and will try hold on.
Easter went well and we did a lot of visiting. Andrew enjoyed hunting for easter eggs with brother, but as soon as he found an egg with a treat in it, he did not need to find more eggs!!! So brother got to enjoy finding lots of easter eggs :)
Big brother had some excitement recently when he lost his first tooth :)
The boys are both excited with the weather getting a little nicer, so they can play outside more.
Andrew had his MRI done at the end of March. The syrinx (pocket of fluid) in his spine grew 2cm. It is now ~5cm. Per the neurosurgery PA, it is pressing on nerves that could affect Andrew's sensation for urination. It will also cause some scoliosis. Some patients have problems with a small syrinx and no problems with a large syrinx. It is case by case. So we see the Neurosurgeon at the end of May to see what our plan is. Otherwise they will be doing another MRI in 6months to check the syrinx growth.
His neurologist is happy with his with his progress. We increased his anti-seizure medication since he is growing/gaining a little weight. She will see him again in October and do another EEG.
Andrew will also see rehab in May and he may get a botox injection into his left hand/arm. His therapists state this works well and it will allow him to have more control of the hand without tightening up.
Therapy has been going well overall and he is really trying to use his left hand. It is very hard but he puts things into the hand and will try hold on.
Easter went well and we did a lot of visiting. Andrew enjoyed hunting for easter eggs with brother, but as soon as he found an egg with a treat in it, he did not need to find more eggs!!! So brother got to enjoy finding lots of easter eggs :)
Big brother had some excitement recently when he lost his first tooth :)
The boys are both excited with the weather getting a little nicer, so they can play outside more.
